Finding cures for children's genetic diseases

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Strathfield Committee Hit the Dance Floor

17/Sep/2018  

The Children’s Medical Research Institute Strathfield Fundraising Committee never stop working – except if it is to dance!


They hold a long list of events across the year, including bus trips, high teas, a trivia night and the real highlight – their annual Dinner Dance.

This year’s Black and Silver-themed Dinner Dance was held on Friday night at a new location: Waterview at Sydney Olympic Park. It was a beautiful venue for the 100-plus in attendance who took part in a sit-down dinner, loads of raffles and auctions plus plenty of dancing!




The highlight of the evening was this year’s special guest speaker. The Strathfield Committee usually invite a CMRI researcher to discuss their work, but for 2018, President Cona Jones decided to invite Jessica Gowans. Jessica is mother to young Henry and Rosalie who have a rare genetic condition known as LCHAD Deficiency. Henry is one of the faces of this year’s Jeans for Genes campaign.

“When we had Henry, we thought we weren’t able to be the parents we thought we would be,’’ Jessica said. “The parents who automatically assumed they would have a ‘healthy baby’, who was able to go to school, get a job, live their own life without the restrictions that a chronic disease can bring. We were wrong. We didn’t automatically have the ‘healthy baby’, but we will do our best to keep him as healthy as he can be. And we rely on research for that to happen.

“We decided to do something, and we asked who can help us. That is how we came to be involved with the Children’s Medical Research Institute and look at ways to support research into better futures for children like Henry.’’
 
Jessica said she was thrilled to meet so many people and hear their stories at the event.
 
“I would like to sincerely thank each and every one of you for being here, for fighting for my Henry and fighting with my Henry. Because of you, CMRI and research, he may one day be free of the burden of chronic disease, and able to live out his life however he likes.’’
 
If you would like to support the research at Children's Medical Research Institute, you can do so by donating today.